The Raven Posted June 17, 2011 Share Posted June 17, 2011 Not been the best week in my life. My 2 1/2 year old son has been seen by a few in the health services. Without confirming Autism they have said he is displaying autisic tendances. He is attending a speech group as he does not talk a great deal. I dont want to start reading up on the internet about it as im only going to get upset. The people that are supposed to be helping us are still refusing to do much until hes 3, my attitude is that if i can do something its better than nothing. So if any of you have some advise then im all ears. In the mean time im looking at going private to get someone to look at him. I really dont know how much more of this i can take. Quote Link to comment Share on other sites More sharing options...
dan294 Posted June 17, 2011 Share Posted June 17, 2011 We had a similar thing with our little girl when she started school, she too displayed autistic tendencies, but she seems to have grown out of them. I'll have a word with my mum, she is the Special Educational needs co-ordinator at the school where she teaches and is pretty clued up on stuff like this. There are comparison charts and questionnaires that you can fill in at home to see where abouts on the spectrum your child is. It might be nothing to worry about. I'll try and see what i can find out mate. What tendencies is he displaying? If you'd rather not put it on here, by all means PM me and i will speak to my mum later. Hope you get sorted mate, as i say hopefully its nothing to worry about. Quote Link to comment Share on other sites More sharing options...
dan294 Posted June 17, 2011 Share Posted June 17, 2011 Might be worth having a look at this too: http://pediatrics.about.com/od/autism/l/bl_autism.htm Quote Link to comment Share on other sites More sharing options...
mwilkinson Posted June 17, 2011 Share Posted June 17, 2011 A good friend of mine has a daughter who has mild autism. It varies considerably from person to person and with the appropriate support can have very little impact. She use to be incredibly fearful of strangers and social environments. It use to confuse her. I had not seen her for a year until last weekend. She has been attending a specialist school and has come on leaps and bounds. You would not notice anything now. She is still quiet and cautious but no more than any other child her age. Basically, have heart my friend. There are some very good support groups and charities out there. If you would like me to ask what support and how soon they got theirs I'm more than happy to ask. Quote Link to comment Share on other sites More sharing options...
The Raven Posted October 5, 2011 Author Share Posted October 5, 2011 Well took im to see the hospital docs yesterday. They have ordered a number of tests from blood test to genetic testing. They are also looking into schooling and one on one speech schooling. All very upseting, but atleast im getting some where. Quote Link to comment Share on other sites More sharing options...
barneybrendan Posted October 5, 2011 Share Posted October 5, 2011 My nephew has severe autism ,that only came about when he was the same age about 3.Routine thats what my brother has found best.A lot of children with mild autism will grow out of it and have no lasting effects.Her indoors used to voluntere weekends for a charity working with children with autism ,that opend her eyes to how many different levels of the condition there are.As said above if you want any information first hand i will ask my brother what ever you want to know. Just remember ROUTINE will help greatly. Quote Link to comment Share on other sites More sharing options...
stevie_b Posted October 5, 2011 Share Posted October 5, 2011 I feel for you chap. Not much concrete advice I can give, but hang in there. The uncertainty is perhaps the worst part of it. Quote Link to comment Share on other sites More sharing options...
Thorin Posted October 5, 2011 Share Posted October 5, 2011 Not that I have any personal experience, but a guy who started following me on Google+ has three kids with autism, some of his posts are very inspiring. https://plus.google.com/104247326154604556320/posts His blog http://lostandtired.com/ Quote Link to comment Share on other sites More sharing options...
Konrad Posted October 5, 2011 Share Posted October 5, 2011 My sisters kid have mild autism, he is 3 years old now, most important thing for them is to have a daily routine and good, healthy diet without sugar and fat and of course a LOT of attention (talking, playing etc.) Quote Link to comment Share on other sites More sharing options...
The Raven Posted October 26, 2011 Author Share Posted October 26, 2011 Well hes been to see the docs at the hospital, and been sent for tests and more help with some support services. They are thinking is almost certainly autism. Thanks for the posts guys Quote Link to comment Share on other sites More sharing options...
The Raven Posted December 20, 2011 Author Share Posted December 20, 2011 Update time. Its amazing what can happen when you stand up and refuse to back down to people. In the new year he is bening taken on by early years support!!! He will have someone go to his play school and someone else come to the house once a week to help him, and us. They are saying we might be able to go on a course that will teach us about autism and there will be other people there from our area. Figners crossed this time next year he might be talking and know what xmas is. Quote Link to comment Share on other sites More sharing options...
Abz Posted December 20, 2011 Share Posted December 20, 2011 Glad to hear it dude. Though, has it been confirmed he is autistic? The only reason I say is people are very quick to put children into boxes. My nephew was put into all sorts of boxes or told by varies people he has a certain conditions. Though his a perfectly normal kid, his speech is slightly impaired or slurred but it is getting better with time. Not saying that you do this but be very weary of labeling him with anything as you get into a mind of being judgmental of him & his character. As mentioned routine is key, attention is key, affection is key, understanding them is key. Also remember kids change very quickly, so don't you & the missus get too stressed over him, I am sure he will be fine. Quote Link to comment Share on other sites More sharing options...
LOGIE Posted December 20, 2011 Share Posted December 20, 2011 http://www.autism.org.uk/ Very helpful people. Quote Link to comment Share on other sites More sharing options...
The Raven Posted December 20, 2011 Author Share Posted December 20, 2011 Yeah abz, i hear what your saying. Nath is suffering delay they say hes about a year behind, he does not talk at all, he might say pwees if he wants something, or ball maybe mumma. They wont tell us that he is autisic until he gets older but they mention it to much now for it not to be. In many ways im lucky he likes having cuddles and gives kisses i know many kids wont do that, he does not mind going to new places and stepping out of the norm. However it could be a whole lot worse. Main thing is he is a happy little boy, who loves cars! which is always a bonus. Quote Link to comment Share on other sites More sharing options...
Abz Posted December 20, 2011 Share Posted December 20, 2011 Yeah abz, i hear what your saying. Nath is suffering delay they say hes about a year behind, he does not talk at all, he might say pwees if he wants something, or ball maybe mumma. They wont tell us that he is autisic until he gets older but they mention it to much now for it not to be. In many ways im lucky he likes having cuddles and gives kisses i know many kids wont do that, he does not mind going to new places and stepping out of the norm. However it could be a whole lot worse. Main thing is he is a happy little boy, who loves cars! which is always a bonus. Glad you understood where I am coming from Russ. Sounds like a perfectly normal kid, give him time... and mark my words, with all the things I mentioned above he will be fine. So don't you & your missus worry too much. Quote Link to comment Share on other sites More sharing options...
RobD Posted December 21, 2011 Share Posted December 21, 2011 We're going through the same dude, my little one has had all the blood tests already and is booked for an MRI scan on the 4th of Jan, we've had a letter saying it could be an over active thyroid gland but the doctor dealing with her is unconvinced ( she does strange movements with her hands, legs and mouth) we thought it could be Tourette's to begin with but they ruled that out! They just don't want to make a judgement because of her age! She's 4 now and weve been back and forth to addenbrookes for the past year and a half now with still no verdict were dreading the MRI scan as she's so young she has to be sedated for it The play group seems to think it could be autism or aspergers but it could be ages before we know Quote Link to comment Share on other sites More sharing options...
Morpheus Posted December 21, 2011 Share Posted December 21, 2011 (edited) Some very positive food for thought http://www.pr.com/article/1076 http://www.ebay.co.uk/itm/Louder-Than-Words-Jenny-McCarthy-/170749519059?pt=Non_Fiction&hash=item27c176e4d3 http://www.ebay.co.uk/itm/Healing-and-Preventing-Autism-Complete-Guide-Jenny-McCarthy-Jerry-Kartzinel-/270861812626?pt=Non_Fiction&hash=item3f109f4392 Edited December 21, 2011 by Morpheus (see edit history) Quote Link to comment Share on other sites More sharing options...
The Raven Posted December 21, 2011 Author Share Posted December 21, 2011 Those look like some really helpful books! Thanks Chin up Rob is all i can say. You have to remember that they dont know anything is wrong. I tend to feel sorry for myself rather than him, like not being able to take him to play football, or him understanding xmas, I have to remind myself he does not know there is anything wrong with him so hes happy in his world. Where the greatest joy in the world is to run around a parked car, or watch toy story. I know it can feel helpless at times, ive been there i have good days when i can cope with the not knowing then i have breakdown days where i get angry at not being able to help him and blame myself. I hope you get to the bottom of the problem without upseting your lil one to much. . Quote Link to comment Share on other sites More sharing options...
RobD Posted December 21, 2011 Share Posted December 21, 2011 Those look like some really helpful books! Thanks Chin up Rob is all i can say. You have to remember that they dont know anything is wrong. I tend to feel sorry for myself rather than him, like not being able to take him to play football, or him understanding xmas, I have to remind myself he does not know there is anything wrong with him so hes happy in his world. Where the greatest joy in the world is to run around a parked car, or watch toy story. I know it can feel helpless at times, ive been there i have good days when i can cope with the not knowing then i have breakdown days where i get angry at not being able to help him and blame myself. I hope you get to the bottom of the problem without upseting your lil one to much. . You to bud, like you say she's very happy in herself. Hope things go well with your lad! My biggest worry is if she has got something wrong that she'll get bullied at school etc, kids can be real nasty at times Quote Link to comment Share on other sites More sharing options...
The Raven Posted February 8, 2012 Author Share Posted February 8, 2012 Update time Nath has now been looked at by a number of people and we have been told he is quite high on the autisim spectrum. The only good thing is the process is now underway for him to have all the help he needs, They are saying he should be on DBL which was kinds like a kick to head. Lots of crying lots of worrying, guess now the only way is up. Hes still a happy little soul who enjoys life. Quote Link to comment Share on other sites More sharing options...
Thorin Posted February 8, 2012 Share Posted February 8, 2012 Hes still a happy little soul who enjoys life. And that's the main thing. No doubt you'll get upset, frustrated, angry, all in equal parts at times, but there's plenty of help and blogs out there. Quote Link to comment Share on other sites More sharing options...
The Raven Posted March 7, 2012 Author Share Posted March 7, 2012 What a difference a month makes, we are now getting so much help with him! His learning has increased, his understanding and his manner is much better. The people that come to the house are going well behond to help us. I know its still going to be a life long fight but seeing a glimmer of hope makes it all worthwhile. Next bit is getting him to speak, until then he has little signs stuck on the wall, Simple stuff Drink, food. They are like little drawings of the action. And we are trying to get him to remove them and give them to us in order to get what he wants. Quote Link to comment Share on other sites More sharing options...
Graham1984 Posted March 7, 2012 Share Posted March 7, 2012 It's nice to see he and you the parents are getting the help and support you all need and deserve, Like you said in your earlier post the fact he can be happy in his ways and world is the key to all this although parents always feel a bit cheated in some aspects of their children's lives growing up that they may not get to experience. To be honest it will most likely make you all closer as a family which I am sure will be great and you may get to skip the teenage years where all kids seem to hate there parents lol. You may be surprised to find that as he grows up he may have some extraordinary talents and be a lot more clever in things possibly outside the normal close family interests and talents such as arts and computers ect as an example. Either way I am sure that others here including myself wish all of you the best for the future. Quote Link to comment Share on other sites More sharing options...
The Raven Posted March 7, 2012 Author Share Posted March 7, 2012 They are saying he is showing he has a Mechanical brain, via the toys he chooses to play with and the way he plays with them. The prime example is he has a simple shape sorter toy, he loves the triangle he spins it looks at from every angle ect, the care worker watched him for a bit and worked out he was lining up the edges with the grooves in the wooden floor by eye! I think a book i read summed it up best, I probably won't be the next Michael Jordan, but with my attention to fine detail and capacity for extraordinary focus, I might be the next Einstein. Or Mozart. Or Van Gogh. They had autism too. Quote Link to comment Share on other sites More sharing options...
Graham1984 Posted March 7, 2012 Share Posted March 7, 2012 I think a book i read summed it up best, I probably won't be the next Michael Jordan, but with my attention to fine detail and capacity for extraordinary focus, I might be the next Einstein. Or Mozart. Or Van Gogh. They had autism too. It's very refreshing when you look at it like that knowing that he could have a very special life and career in something he highly enjoys rather than a lot of people who end up in mundane unsatisfying jobs we hate due to our own failures and lack of effort. I am sure he will grow up to be highly focused on what he wants to do rather than like many of us starting a career in one thing and then swapping due to finding out the job is not as we thought it would be. People with his tendencies that gravitate to what they enjoy and the repetition not bothering or boring them at all are more destined to succeed than most other people as my guessing would be he will be as enthusiastic as he was on day 1 which I think most of us could admit they wish they still were. Quote Link to comment Share on other sites More sharing options...
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